As the father of a disabled daughter with a rare genetic disorder I loved how this book was from 'Daddy's' perspective. It made me cry a number of times...especially the letter to Schuyler! Medical condition differences aside, every part of this book hit home...the unanswered questions searching for a dignosis...the frustration with doctors and schools...the feelings of simultaneous joy and helplessness...and the personal struggles as well. ABSOLUTELY worth the read!,,

Reading "Schuyler's Monster" was like looking in a mirror. As the parent of a child with a rare brain malformation, reading the experience of another family going through a similar ordeal was so gratifying. Everything from diagnosis to the IEP process remained true to life and informative. The experience of reading about Schuyler herself makes this book worth at least double the asking price!